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I got my lab tests back, and it couldn't find any UTI, there was trace blood in my urine.  The nurse who did my swabs said it wasn't inflamed my vagina, but I did have an abnormal grey-green clumpy thick discharge that was like an STD, or a cross between thrush and BV.  My swabs came back negative for the STD they tested me for (no surprise since I am not sexually active), and was not clear on whether I had vaginitis either, only that I had elevated yeast and bacteria cells.  The antibiotics I'd been taking for the presumed UTI for over a week, were not helping at all, and I am only get worse, with pain and pressure in bladder, bowel, lower back and abdomen, frequent urination, and urgency.so I rang the nurse again, and told her my urinary symptoms were getting worse, and the vaginal symptoms had not abated, she talked to the doctor, and he told me to stop the antibiotics and use a thrush cream as well as another antibiotic in case it was also BV.  My discharge is still greenish-grey, but now is tinged with blood, but is not yet as excessive, I just had my period that finished about four days ago, I don't usually get spotting after a period, and its bright red and fresh, its a tiny amount though.   I used my first application of thrush cream last night, and woke up with burning stinging pain inside my vagina.  It went away after a few hours. I haven't started the other other antibiotics yet. I stopped the cranberry and previous antibiotics today, and don't seem to be urinating quite as much, and am trying to drink less even though I get thirsty often. I have pain and cramping in my pelvic area and lower abdomen.  A tender bruised feeling in my lower back, and burning muscular like pain all the way up my back and around my chest (that could just be my fibromyalgia.  When I eat I bloat, and it increased the pain and pressure in my bladder, I can't eat as much as usual without feeling full.  My doctor is not going to do any more tests for now, and instead the nurse has booked me in to a sexual health clinic in two weeks.  This has been steadily getting worse for months.  Please, I am really frightened and depressed about this.  Has anyone had anything like this related to vaginitis? 
 
Belatsunat, the Inexorable: it is what it isinnostrantsa on October 6th, 2012 07:16 am (UTC)
First: I'm so sorry this is happening to you, in a situation that sounds like you're having to deal with all by yourself. Is there any way you can get a second opinion from another doctor, before your sexual health clinic appointment? I ask because it sounds as though your medical professionals aren't listening to you (you're not sexually active, but... going to a sexual health clinic? That does not exactly make sense.)

Next: while I have not experienced what you have, I did have a situation recently where my vaginal introitus was inflamed and sore, with discharge. It turned out the brand of toilet paper I'd been using didn't agree with me. Now, I'm not suggesting this is the case for you, but I am curious about whether there are any physical habits of yours that might have changed over the course of this, that would have an effect on your discharge, or the vaginal/pelvic pain. I'd suggest being gentle with yourself, washing with plain warm water, and (even though it will hurt, and I'm so very sorry) maintaining your hydration levels, both with water and cranberry juice. It's not going to do you much good to avoid frequent urination, as dehydration leads to other problems, and you sound like you have more than enough on your plate already.

I think that... asking over at vaginapagina (lj comm, if you're not already aware/a member) would also be a good idea. I myself am leaning toward some kind of infection, considering the description of your discharge, and the nature and location of your pain, but I would strongly suggest finding another medical professional and enlisting their help. I really feel for you, and wish I could offer you something more tangible in the way of help. 8(
Sarcasticia Nitpickersontisiphone on October 6th, 2012 07:33 am (UTC)
I agree, the OP needs a second opinion. The lower back pain and blood is particularly worrisome, that sounds like an acute infection that's not responding to antibiotics, not something that can be dealt with in two weeks. OP, keep a particular eye on that and start tracking your temperature - if you start getting more back pain, more blood, or start running more than a mild fever, seek emergency care ASAP.
angelsweep on October 6th, 2012 09:49 am (UTC)
I don't yet have a thermometer, I should probably get one. I saw a gyno in Jan, who examined me and asked me questions, she told me she was 99% sure I had endometriosis, but she didn't advise a surgery to confirm it, as it was risky, and probably not much could be done, other gynos since said it's probably not that, but hormonal, but none of them examined me or asked me any questions. I just looked up endometriosis and it also has all the symptoms I am having, but if it's growing in my bladder that's really bad. :( Though the strange discharge is still a mystery.

Edited at 2012-10-06 09:55 am (UTC)
Meganarwen_17 on October 6th, 2012 03:33 pm (UTC)
Agreed. I've had obscure vaginal infections myself; I had a vaginal staph infection once. OP, could you have a medical prof culture out your discharge to see if anything abnormal grows?
angelsweep on October 7th, 2012 10:09 am (UTC)
I don't know how to do that. I would assume they would just notice anything weird at the labs, they just said elevated yeast and bacteria cells. I am getting some more swabs in a few weeks, so I will ask if they can check for staph too, thanks, I have had staph infection in my kidneys before.
angelsweep on October 6th, 2012 09:22 am (UTC)
I know. :( I think they are brushing me off, but I can't get another doctor right now it's just not possible in my area. The nurse said the clinic doesn't only deal with sexual stuff, and are experts in problems in that area. The nurse that did the swabs was different than the one I spoke to on the phone, she said she'd ring me when the results came in but didn't, it took me over a week to find out my results, they said they were trying to figure out what the results meant, my doc was certain it was infection as there was a lot of blood in my urine according to his dip test. The nurse said it seemed like an infection in my vagina too, but she said she wasn't sure, she said if it comes back with nothing she will will book me in to see a gyno. But that hasn't happened and she hasn't been available to talk to. I am still drinking a lot, but thought maybe I was drinking way too much before, I was probably drinking about 5 litres of water a day. I stopped the cranberry because my fibro friends said the acidity would aggravate my IBS symptoms, and also they might of being having a diuretic effect. There have been a few things I've changed since that I am thinking have something to do with this. I started rinsing my cup with soap in the past few months (natural fragrance-free) after emptying, where as before I was just rinsing it in water. The other thing is that I've been using an antibiotic cream Foban around my genital area for my recurring cysts, in the loin parts, not in my actual vagina, but some could have contaminated my cup, and got inside maybe. The other thing is that I think I scratched with my fingernail or cut myself inside my vagina one time when I had problems getting my cup out, it bled quite a bit and stung for a few days, perhaps some infection or irritation started then? Then there's my bowels have been playing up with cycling diarrhea and constipation for the past month or so, about a month ago it caused something painful like a tear or something, so I used a steroid ointment in my back passage, I;ve been using steroid cream on eczema around the area too. But the swabs haven't picked up anything apart from the elevated cells, the nurse said they don't treat that unless I am having symptoms, I said of course I was having symptoms, so that's why I've started the thrush cream. Thank you for telling me about vaginapagina, I was trying to find something like that. The nurse did suggest that changing sexual partners, reactions to sperm etc, can do it before I cut her off, since that's definitely not a factor! So then she asked how often I clean down there with soap, and I said well, all the time, she said soaps, overcleaniness could do it. I can't see how that could cause all my bladder pain, urinary problems, and back pain though!
Sarcasticia Nitpickersontisiphone on October 6th, 2012 10:00 am (UTC)
Excessive use of soap can lead to UTIs, which can spread to the bladder and kidneys (which is one potential cause of back pain). For the rest, this is too complicated for us to do much other than say "get thee back to a doctor!" I do have one question - have you had a pelvic exam recently? If you're having a lot of constipation to the point of having tears in the anal area, I'd be very concerned about a fistula (which is a tear in the wall between the vagina and the anus). Even a small fistula can result in the spread of bacteria all over the area. (Note that I am NOT a medical professional and am not saying that this is what it is!!)

Edited at 2012-10-06 10:01 am (UTC)
angelsweep on October 6th, 2012 11:56 am (UTC)
I guess I wouldn't know what excessive is? I use a gentle soap, and use plain water more than soap, but I was also using wetwipes after going to the toilet, and I have been using a teatree soap around the area but only once every couple of days, because it helps reduce the cysts. I told the doc I thought I had a fissure. I didn't know how else to describe it, felt something like a long painful abrasion inside my rectum, although it was more towards the back not on the vaginal side, which the ointment helped with, the pain was quite bad and lasted about a week. I do get piles, but I had none at the time. He said it couldn't be a fissure because that was external. He gave me more ointment anyway incase whatever it was happened again. If this gets any worse I will go see the doc again.
Sarcasticia Nitpickersontisiphone on October 6th, 2012 03:40 pm (UTC)
No, an anal fissure is definitely not external! What you're describing does sound like it, though. The more I hear about the care you're receiving the more concerning it sounds. Are you completely sure there are no other medical professionals you can go to?
angelsweep on October 7th, 2012 10:18 am (UTC)
I think the reason I am going to the sexual health clinic, is because they are concerned for the distance I would have to travel again to my doc, which is in another town from me (can't get a doc in my town), and the cost of getting more swabs, they said the sexual health clinic is in my town, and cheaper or free for the swabs, and they are experts in all things gynocological, so might be able to address my concerns better. I think if my symptoms became very unbearable I would need to go to the ER.
Belatsunat, the Inexorable: it is what it isinnostrantsa on October 8th, 2012 03:41 am (UTC)
*nods* Okay, I understand better now. And tisiphone is correct about soaps causing irritation to the vulva and urethra, even very gentle ones-- I've read articles and asked doctors about that, and to a one, they've recommended keeping soap strictly to the outer areas, and keeping it (as much as possible) from getting in between the labia, or further.

I hope the clinicians can help, you, once you get there; and yes, ER if you find you get much worse, or have distressing temperature fluctuations. Perhaps the ER might be your better option, given how long you'll have to wait to get in. 8(
chamekkechamekke on October 6th, 2012 05:41 pm (UTC)
Between the increased pain (and other worrying symptoms) and the conflicting information you've been given, I'm feeling very concerned for you.

Is there any reason you're not just going to A&E? They're best equipped to do a thorough, quick diagnosis and treatment, after all.

We have a 24-hour NurseLine where I live, and one thing the nurse on call always says is that if you're in pain and scared, just go to Emergency, because that's what they're there for.